Using CYSTADROPS
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SHARE YOUR STORY WITH OTHER INDIVIDUALS WITH CYSTINOSIS AND THEIR LOVED ONES
WHY SHARE YOUR STORY?
Your story can be a powerful way to create connections with people who are experiencing some of the same challenges you are experiencing. It may help people with cystinosis and their loved ones to find hope and strength on their journey. People in the cystinosis community may benefit from learning about your personal experiences with cystinosis, including your ocular symptoms and treatment with CYSTADROPS. Participation is completely voluntary, and you may stop participating in the program at any time and for any reason.
WHAT WILL YOU BE ASKED TO DO?
Your story is important, and we’d love to hear it and help you share it with others! You will decide how much or how little you want to share about your experiences with cystinosis or CYSTADROPS. We can assist you with the draft of your story. Parts of your story may appear in patient education materials or on our website. We may even discuss capturing your story in a video if you’re interested! If you choose, you can share your story anonymously, and your real name will not be disclosed on any materials to protect your privacy.
Please note that submitting your information below does not necessarily mean that you will be selected to share your story.
